Just a reminder, our next meeting is THIS Thursday, July 26, from 6:30-8pm. We meet in the conference room at St. James Catholic Church. We’ll be discussing Lyme Literate Medical Doctors, as well as the best practices for presenting our case to a doctor.
Hope to see you there!
Blood tests of all kinds have been part of Christina’s life for many years. But recently she has added weekly saline infusions. Her veins are not always cooperative during all these procedures. They roll, blow and sometimes, just refuse to give anything.
During a recent infusion, after repeated attempts with no success, she realized she was feeling cold. Christinas always feels cold – her core temperature seems to be low right now. Well, the nurse brought in a portable heater and cranked it up. It made all the difference in the world. Since then, she has had success at every infusion. Her nurse warms up the room – and I mean WARM – and Christina holds her arm close to the heater. So far, things have been going much more smoothly.
If any of you have this issue, you may want to carry an instant hot pack, or even a heating pad. Get your arm as warm as possible and hopefully you will see a difference. It’s worth a try.
Hope it helps,
Here is a link to a story on the Fox News website. I think her story will seem familiar to many of you.
It’s good to see coverage of this on a national news outlet.
Ticks Transmit More than Lyme Disease
My daughter found this video of a girl who currently lives with a PICC line. She provides very clear information regarding the practicalities of this device. She talks about lots of daily living details – from how she wraps it for a shower, to a special sleeve that she’s found.
The link is below, as well as on our newly-revamped Resources Pages. Hope it’s helpful!
Living with EDS: All about my PICC line
I hope this post finds you having a good day.
I’m writing because something occurred to me today and I want to share it with you.
When Christina was diagnosed right before Christmas, our doctor recommended a few books to introduce us to this new Lyme world in which we now lived . One that he recommended was “The Beginner’s Guide to Lyme Disease” by Nicola McFadzean. So I got it from Amazon, and settled down to finally understand what was going on with my daughter.
What I found, however, were acronyms like IDSA, CDC and ILADS. I found conflicting points of view about treatments, and a host of medications I had never heard of. My first reaction was to be overwhelmed, and to shelve the book for a later date. That was 6 months ago.
Well, yesterday I pulled it out again. And this time things were different. I am now familiar with the acronyms, as well as the various treatment options and methods. In short, the book has become a much more valuable resource for me.
So my advice to those who may have put aside materials that felt too advanced? Re-visit them!
In the beginning, there is so much information – websites, facebook pages, books. It’s overwhelming to say the least. But let some time and experience pass, and check out those resources again. Like me, you may find that you are now ready to absorb all that they contain.