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Under Our Skin

Hi everyone,

I recently came  across this documentary called “Under Our Skin” —

Here is information from the website:

“A chilling tale of microbes, medicine and money, this Oscar shortlisted film has changed the landscape of the Lyme epidemic, bringing unprecedented awareness in an engaging and accessible way. The definitive record of the Lyme controversy, UNDER OUR SKIN exposes a hidden story of medical and scientific malfeasance and neglect.  As official case numbers explode and hundreds of thousands of people around the world go undiagnosed or misdiagnosed, the film is as relevant and timely as ever.”

Below is a link to the trailer.

I will be watching the complete documentary, and hope to show it at one of our meetings.

Let me know what you think when you watch the trailer.

Under Our Skin

Giving and Receiving

So, we’re on our way to a family vacation – planned for almost a whole year. The morning we are supposed to go, my daughter tells me she just can’t do it.  It’s just too much.  She has not been feeling well all week, so this really doesn’t surprise me.

Reluctantly, off we go without her- as I have 4 other children who have been counting the days to fun in the sun.

Headphones in place, we are happily making progress toward our destination.  My daughter’s doctor returns the call I have made to him, tells me we need to take her to the hospital, and, just like that – our vacation turns into a STAYcation.

Unsurprisingly, my other children said nothing – not one complaint.  They would rather give up a week at the beach than have their sister alone and sick.

My daughter, though,  felt bad about the whole thing.  As she and I were talking about it, I asked her if she felt mostly like a “receiver” rather than a “giver”.  Immediately she said yes.  It was then that I realized something – she needed to know that though she WAS on the receiving end of lots of our attention, she gave us so much.  The reaction of my other children was proof of this.

How about your situation?  If you are the one who is ill, please don’t feel you are only a drain on your family and friends.  You are an integral part of all the people in your life.

And if you are the caregiver, let your sick one “give ” to you – even if it’s just a smile.  Tell them how much they mean to you.  It goes a long way.

 

 

 

Savannah Lyme is YOUR Support Group

Hi everyone,

 Savannah Lyme, is a place for YOU, the people dealing with this nightmare.  So what would you like to experience at our group?  What would make it worth your while to get up and out of your house for a few hours?  Your energy is precious, so I want the meetings to be positive for you.

Email savannahlyme@gmail.com  and give me your thoughts.

Denise

 

Global Lyme Alliance

Hi everyone,

I just watched this speech given by Marisol Thomas at the Global Lyme Alliance Gala in 2017.  She is an articulate voice speaking about the pain, isolation and stigma of Lyme.  Global Lyme Alliance was started by Ally Hilfiger, daughter of Tommy Hilfiger.   I will put Global Lyme Alliance on the resources page.

If you are in the Savannah GA area, please check in with us.  One of the messages from Marisol’s speech was the importance of a support system.  SavannahLyme can help to fill that space – hope to see you at our first meeting – Thursday, June 28, at St. James the Less Catholic Church.

Marisol Thomas GLA speech

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